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Our mission is to serve kidney disease patients and their families, increase awareness and early detection of chronic kidney disease (CKD), provide a network for collaboration among renal healthcare providers and promote organ donation. 

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News & Notes

Posted from American Kidney Fund, www.kidneyfund.ogr

Imagine getting a diagnosis of a serious disease and then hearing your doctor say, “There is no treatment.” That’s what every adult with autosomal dominant polycystic kidney disease (ADPKD) heard—until now.

In some of the best news for the kidney community in a long time, the FDA just this week approved a new drug that has been shown to slow down the progression of ADPKD to kidney failure.

Polycystic kidney disease (PKD) is a genetic disease that causes cysts to grow inside the kidneys. These cysts make the kidneys much larger than they should be and damage the tissue that the kidneys are made of, causing chronic kidney disease (CKD) , which can lead to kidney failure, or end-stage renal disease (ESRD). PKD causes about 2 percent (2 out of every 100) of the cases of kidney failure in the United States each year.

ADPKD is the most common type of PKD. About 9 out of every 10 people with PKD have the autosomal dominant form, which is also the most common inherited kidney disease. ADPKD causes cysts to form only in the kidneys and symptoms of the disease may not appear until a person is between 30 and 50 years old.

The new drug, JYNARQUE™, is a pill taken twice a day that slows the growth of cysts and has been shown to preserve kidney function. It is a long-term use drug—extending the time before a patient needs dialysis or a transplant, though it does not cure ADPKD. JYNARQUE™ was developed by Otsuka Pharmaceuticals.

Posted: April 27, 2018 | Author: AKF Staff

KHAKY Country Fair and Fun Walk - Danville, KY

Join us for a summer Country Fair, 5k and 2k fun walk to raise awareness of kidney disease here in Kentucky. The fun starts, Sunday afternoon, Sept 30, at 1:30PM at Millennium Park in Danville. There will be a games, prizes, food, inflatables, petting zoo, health screenings and more. Bring a blanket or chairs and the whole family for a great time. If you are a dialysis patient, living kidney donor or kidney transplant recipient check in when you arrive and receive a special gift.

Congrats to our Central KY Country Fair Team!

Special THANKS to all the great volunteers, sponsors and participants in our first Central KY KHAKY Country Fair and Fun Walk! Led by Erica Porter, this team of volunteers worked tirelessly to put this event together. Thanks to the Taylor County Cattlemen's Assoc for the fresh hot hamburgers and hotdogs; Kidwise Amusements for the inflatable slide and snow cones; Forcht Bank for the free ice cream; and all of our sponsors! It was a beautiful day and a fun-filled event. We hope to build on that great start to make it even better next year!

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